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Ethical issues in governing biobanks : global perspectives / edited by Bernice Elger ... [et al.]

データ種別	図書
出版者	Aldershot, England ; Burlington, Vt. : Ashgate
出版年	c2008
本文言語	英語
大きさ	vi, 257 p. ; 24 cm

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配架場所	請求記号	巻　次	ISBN	資料番号	資料状態	利用注記	コメント	予約・取寄	申込書	仮想書架
書庫2階	QH:438.7:E836:2008	: hardback	9780754672555	005400803				予約・取寄		仮想書架	予約・取寄		仮想書架

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内容注記	Biobanks, genomics, and research : a nightmare for public policy makers? / Alex Mauron Biobanks in the literature / Bartha Maria Knoppers and Ma'n H. Abdul-Rahman Guidelines on biobanks : emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno Ethical issues regarding research biobanks : aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] Consent and use of samples / Bernice Elger Consent to research involving human biological samples obtained during medical care / Bernice Elger Collective consent / Agomoni Ganguli-Mitra Withdrawal of consent and destruction of samples / Bernice Elger Anonymization and coding / Bernice Elger Informing participants about research results / Andrea Boggio Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio Benefit-sharing and remuneration / Agomoni Ganguli-Mitra Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron Biobanks and genomic research : what shape the future? / Alex Capron
一般注記	Includes bibliographical references and index
著者標目	Elger, Bernice
件　名	LCSH:Human genetics -- Databases -- Moral and ethical aspects 全ての件名で検索 LCSH:Human genetics -- Databases -- Law and legislation 全ての件名で検索 MESH:Genome, Human MESH:Confidentiality MESH:Databases, Genetic -- ethics 全ての件名で検索 MESH:Databases, Genetic -- legislation & jurisprudence 全ての件名で検索 MESH:Genetic Research -- ethics 全ての件名で検索 MESH:Genetics, Population -- ethics 全ての件名で検索
分　類	LCC:QH438.7 DC22:174.2
巻冊次	: hardback ; ISBN:9780754672555 ; XISBN:0754672557
ISBN	9780754672555

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