Ethical issues in governing biobanks : global perspectives / edited by Bernice Elger ... [et al.]
データ種別 | 図書 |
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出版情報 | Aldershot, England ; Burlington, Vt. : Ashgate , c2008 |
本文言語 | 英語 |
大きさ | vi, 257 p. ; 24 cm |
所蔵情報を非表示
配架場所 | 請求記号 | 巻 次 | ISBN | 資料番号 | 資料状態 | 利用注記 | コメント | 予約・取寄 | 申込書 | 仮想書架 |
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書庫2階 | QH:438.7:E836:2008 | : hardback | 9780754672555 | 005400803 |
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書誌詳細を非表示
内容注記 | Biobanks, genomics, and research : a nightmare for public policy makers? / Alex Mauron Biobanks in the literature / Bartha Maria Knoppers and Ma'n H. Abdul-Rahman Guidelines on biobanks : emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno Ethical issues regarding research biobanks : aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] Consent and use of samples / Bernice Elger Consent to research involving human biological samples obtained during medical care / Bernice Elger Collective consent / Agomoni Ganguli-Mitra Withdrawal of consent and destruction of samples / Bernice Elger Anonymization and coding / Bernice Elger Informing participants about research results / Andrea Boggio Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio Benefit-sharing and remuneration / Agomoni Ganguli-Mitra Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron Biobanks and genomic research : what shape the future? / Alex Capron |
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一般注記 | Includes bibliographical references and index |
著者標目 | Elger, Bernice |
件 名 | LCSH:Human genetics -- Databases -- Moral and ethical aspects
全ての件名で検索
LCSH:Human genetics -- Databases -- Law and legislation 全ての件名で検索 MESH:Genome, Human MESH:Confidentiality MESH:Databases, Genetic -- ethics 全ての件名で検索 MESH:Databases, Genetic -- legislation & jurisprudence 全ての件名で検索 MESH:Genetic Research -- ethics 全ての件名で検索 MESH:Genetics, Population -- ethics 全ての件名で検索 |
分 類 | LCC:QH438.7 DC22:174.2 |
巻冊次 | : hardback ; ISBN:9780754672555 ; XISBN:0754672557 |
ISBN | 9780754672555 |
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